Breast Cancer in Berlin
A free guide for patients and families in Berlin

Take a breath. You don't have to read it all today.

This guide walks through breast cancer care in Berlin step by step, from the first finding to treatment, recovery and follow-up. Read the part you need now and come back to the rest when you're ready.

A gentle note: this guide is here to help you understand and prepare. It is not medical advice and can't replace your breast centre or oncology team. Every treatment plan is individual, so ask your team which steps apply to you and when.

Start here

Who looks after you

In Berlin, care is usually coordinated by a certified breast centre (zertifiziertes Brustzentrum) with a team of specialists. Berlin’s certified centres include the Charité and Vivantes (see Support in Berlin). Depending on your situation, you may meet a gynaecologist, radiologist, pathologist, breast surgeon, medical oncologist, radiation oncologist, specialist nurses, a psycho-oncologist and social services.

Your first contact

Hausarzt or gynaecologist

They can assess symptoms, arrange first tests or refer you to a breast specialist. If you notice a new lump, a change in the skin or nipple, or bloody discharge from the nipple, get it checked promptly.

Specialist care

Breast centre

You can ask whether the centre is certified by the German Cancer Society (DKG) and how your case is discussed at the tumour board (Tumorkonferenz).

Your rights

Ask, understand, decide

You can ask for plain-language explanations, copies of your reports and time to think about options. A second opinion is your right if you're unsure. Please don't delay urgent care while you seek one.

The pathway

The pathway, one step at a time

This is a typical map, not a fixed timetable. Some tests happen at the same time, and not everyone needs every step. The order of treatment depends on the tumour's biology, its stage, your health, your wishes and the aim of treatment.

Phase one

Finding out

Waiting for results is often the hardest part. Feeling unsettled is normal. You can call your centre and ask when results are expected.

  1. 1
    First days, as soon as possible

    A finding or symptom is assessed

    An unclear screening result or a symptom is usually followed by a clinical examination and imaging, most often mammography and ultrasound. MRI may be used in some situations.

    What you can ask or do
    • Ask what was seen and what the next test will be.
    • Keep your appointment letters and imaging reports together.
    • Remember that an unclear screening result does not automatically mean cancer.
  2. 2
    After imaging; timing varies

    Biopsy and pathology

    A small tissue sample, often taken with a core needle biopsy, is examined by a pathologist. If cancer is found, the report may describe the tumour type and grade, hormone receptors (ER/PR), HER2 status and sometimes Ki-67.

    What you can ask or do
    • Ask for a copy of the pathology report.
    • Ask what each marker means for your treatment.
    • Receptor tests and extra tests can take time. Ask when results are expected.
  3. 3
    Before treatment is chosen

    Further tests and staging

    Your team works out how far the disease has spread and whether more imaging is needed. This can include breast MRI, ultrasound of the lymph nodes or, in some cases, CT, bone imaging or other scans. Genetic counselling or testing may be offered based on your age, family history and clinical criteria.

    What you can ask or do
    • Not everyone needs every scan.
    • Ask what question each test is meant to answer.
    • Check how and when the results will be discussed with you.
Phase two

Making a plan

You're allowed to take notes, ask for things to be repeated and bring someone you trust. Good teams expect questions.

  1. 4
    Once the key results are in

    Tumour board and a shared treatment plan

    A team of specialists reviews your findings together and recommends a plan. You should be told the aim, order and expected length of treatment, along with its benefits, risks and alternatives.

    What you can ask or do
    • Ask whether treatment starts with medicine before surgery (neoadjuvant) or with surgery first.
    • Ask about fertility, menopause, contraception and pregnancy plans if they matter to you.
    • Ask who you can contact between appointments.
Phase three

Treatment

Treatment can be tiring in ways that are hard to explain to others. Asking for help is part of looking after yourself.

  1. 5
    If recommended; weeks to months

    Medicines before or after surgery

    Depending on the subtype and stage, treatment may include chemotherapy, anti-HER2 treatment, endocrine (hormone-blocking) treatment, immunotherapy or targeted medicines. Not everyone needs all of these.

    What you can ask or do
    • Before each treatment, ask about blood tests, pre-medication and how side effects can be prevented.
    • Get the 24-hour urgent contact number and written instructions for fever or other warning signs.
    • Talk about fatigue, nausea, infection risk, nerve problems (neuropathy), hair changes, fertility and ovarian function, and any work or childcare needs.
  2. 6
    At the point your team chooses

    Surgery and recovery in hospital

    Options may include breast-conserving surgery or mastectomy, with lymph-node assessment when needed. Reconstruction or oncoplastic approaches may be discussed. The type of operation and the length of the hospital stay vary.

    What you can ask or do
    • Ask which operation is planned and why, including any lymph-node surgery.
    • Talk about reconstruction, a prosthesis, drains, wound care and pain relief.
    • Ask about arm and shoulder exercises, lifting limits, driving and when to seek help.
    • Ask when the final surgical pathology and the next treatment decision will be ready.
  3. 7
    After surgery, if needed

    Radiotherapy

    Radiotherapy is recommended for many people, though not everyone. Planning and the number of sessions depend on the operation, the pathology and your individual risk. It is usually given as an outpatient.

    What you can ask or do
    • Ask when planning happens and how many visits to expect.
    • Talk about skin care, tiredness, travel and work arrangements.
    • Ask which symptoms to report during and after treatment.
  4. 8
    May continue for years, if needed

    Long-term treatment

    For hormone-receptor-positive disease, endocrine therapy may be recommended for several years. Depending on menopausal status and risk, options can include tamoxifen, aromatase inhibitors and ovarian suppression. Other subtypes may need ongoing targeted treatment.

    What you can ask or do
    • Ask how long it lasts, what it does, its side effects and how they can be managed.
    • Please don't stop or change your medicine without talking to your treating team first.
    • Talk about bone health, sexual health, menopause symptoms and pregnancy plans where relevant.
Phase four

Life after treatment

The end of treatment can bring relief and new worries at the same time. Both are common, and support is still there for you.

  1. 9
    After intensive treatment, when the time is right

    Rehabilitation and everyday life

    Rehabilitation (Reha) can help with physical recovery, fatigue, emotional wellbeing and going back to work. Anschlussrehabilitation (AHB) may follow straight after hospital treatment; other rehabilitation can be arranged later. Who is eligible and who pays depends on your circumstances.

    What you can ask or do
    • Ask the hospital social service or your oncology practice to explain the application and timing.
    • Ask about physiotherapy, lymphoedema care, psycho-oncology, nutrition and exercise support.
    • Talk about a gradual return to work (stufenweise Wiedereingliederung) if it applies to you.
  2. 10
    Long-term follow-up

    Nachsorge: follow-up care

    Follow-up is planned around your treatment and your risk. It usually includes regular check-ups and breast imaging at recommended intervals. Extra scans or blood tests aren't automatically helpful for everyone without symptoms.

    What you can ask or do
    • Leave with a written follow-up plan: who, when, which imaging and how to book.
    • Know which team looks after your ongoing medicines and any late effects.
    • Report new or lasting symptoms. You don't need to wait for the next routine visit.
Safety first

When to call your team straight away

Follow the emergency instructions your oncology team gave you. During chemotherapy or other systemic treatment, a fever can be a medical emergency. Use the exact temperature and phone number your centre gave you, and don't wait for your next appointment.

112

Call 112 if you feel severely unwell, have difficulty breathing, chest pain, confusion, uncontrolled bleeding or any other life-threatening symptom.

Also contact your team promptly for:

  • signs of infection
  • an arm or leg that suddenly becomes painful, red or swollen
  • vomiting or diarrhoea you can't control, or being unable to drink
  • new severe pain
  • problems with a wound, drain or port

This list is not complete. If something worries you, it's always fine to call.

Practical help in Berlin

Support beyond medical treatment

Cancer affects money, work, home and family too. These are the main places to ask. Rules depend on your insurance, job and situation, so check before you arrange anything. Insurance, sick pay and rehabilitation follow German national rules that apply in Berlin; for local counselling and self-help, see Support in Berlin.

Health insurance (Krankenkasse)

Ask your statutory or private insurer about prescribed medicines, transport to treatment, household help, rehabilitation and any approvals or co-payments you need.

Household help (Haushaltshilfe)

Some insured people can get help at home when illness or treatment stops them doing essential tasks and no one else in the household can. Ask your insurer before arranging it; approval, duration and co-payments vary.

Sick leave and income

Ask your doctor, employer, insurer or a social counselling service about the sick note (Arbeitsunfähigkeitsbescheinigung, AU), continued pay, Krankengeld and any deadlines. What you're entitled to depends on your job and insurance.

Rehabilitation and work

Ask the hospital social service or Deutsche Rentenversicherung about medical rehabilitation, AHB and a gradual return to work. Who pays and how to apply depends on your situation.

Emotional and family support

You can ask for psycho-oncology, social work, family counselling, childcare support or help explaining the diagnosis to children. Breast centres and cancer counselling centres can point you to local services.

Travel and practical costs

Ask your insurer whether prescribed journeys to treatment can be reimbursed and what approval or paperwork is needed. Keep prescriptions, receipts and attendance confirmations.

German words you'll hear often

Brustzentrum
breast centre
Tumorkonferenz
tumour board
Befund
report or result
Biopsie
biopsy
Nebenwirkungen
side effects
Haushaltshilfe
household help
Krankengeld
sickness benefit
AHB
rehabilitation straight after hospital
Nachsorge
follow-up care
For family and friends

When someone you love is diagnosed

You don't need the perfect words. Steady, practical presence usually matters more than advice. Everyone is different, so let the person lead and check what they'd like.

Things that often help

  • Offer something specific: "Can I drive you on Tuesday?" is easier to accept than "Let me know if you need anything."
  • Help with meals, shopping, childcare, pets or paperwork.
  • Come to appointments to take notes, if they'd like that.
  • Listen more than you talk. Silence is fine.
  • Keep inviting them to things, and make it easy to say no.

Things to go easy on

  • Pressure to "stay positive". Hard days are allowed.
  • Stories about other people's cancer, good or bad.
  • Unasked-for advice on diets, supplements or alternative cures.
  • Questions about prognosis they haven't brought up.

"I'm here. You don't have to explain anything."

Look after yourself too

Supporting someone is demanding. Cancer counselling centres (Krebsberatungsstellen) and the Krebsinformationsdienst also help relatives and friends. If there are children in the family, the breast centre's psycho-oncology or social service can help you explain what's happening in a way that fits their age.

See trusted support services

Take this to your appointment

Your appointment checklist

Tick what you need. Your ticks and notes are saved in this browser only, on this device. Bring someone you trust if you'd like help taking notes.

Before you go
Questions you might ask
Local help

Support in Berlin

These organisations are based in Berlin. Phone numbers, hours and appointment rules change, so please call or check the website before you go. This list is a starting point, not a recommendation and not complete.

Counselling for patients and relatives

Berliner Krebsgesellschaft e.V.

Psychosocial cancer counselling in person, by phone, video or email. Also sports consultations, a fatigue clinic, support for children of parents with cancer and a hardship fund.

krebsberatung berlin e.V.

Independent, confidential counselling for people with cancer and their relatives: individual, couple and family sessions and groups. Free of charge. Counselling in Polish and English, and an interpreting service for other languages.

District counselling offices (Bezirksämter)

Every Berlin district office has a counselling service for people with cancer or a chronic illness.

  • Phone for addresses and hours: 030 115 (Berlin government service number)

Breast centres in Berlin

Charité Brustzentrum

Certified breast centre of the Charité. The team includes psychologists, psycho-oncology and breast care nurses. A separate centre for familial breast and ovarian cancer offers genetic counselling.

Vivantes Brustzentrum

Certified breast centre at Klinikum Am Urban, with a clinic for assessing findings.

  • Address: Dieffenbachstraße 1, 10967 Berlin (Kreuzberg)
  • Contact and hours: See the centre’s contact page for current phone numbers and consultation times.
  • Online: vivantes.de ↗

Find other certified centres

The German Cancer Society’s directory of certified cancer centres lets you search for breast centres in Berlin.

Self-help and peer support

Selbsthilfegruppe Brustkrebs in der Charité Berlin

An open self-help group for people with a breast cancer diagnosis, linked to the Charité Comprehensive Cancer Center. Meets online (Zoom, first Thursday of the month) and in person (Thursdays, 17:00–19:00). There is also a WhatsApp group.

SEKIS Berlin

Berlin’s self-help contact and information centre. Its group database lets you search for “Krebs” or “Brustkrebs”.

BRCA-Netzwerk e.V.

Self-help network for people with hereditary breast and ovarian cancer, with a discussion circle in Berlin.

Phone lines you can call from Berlin

Krebsinformationsdienst (DKFZ)

Free cancer information service. Can also help you find counselling near you.

Infonetz Krebs (Deutsche Krebshilfe)

Free phone line for questions about cancer. Deutsche Krebshilfe also offers a hardship fund.

Medical on-call service

For problems that can’t wait until your practice opens but are not life-threatening. In an emergency call 112.

Details checked against the organisations’ own websites in October 2026. If something is out of date, the organisation’s website is the best source.

Trusted information

Free, reliable resources

These come from German national cancer organisations and the current evidence-based guideline, and they apply in Berlin too. Some are only in German; your browser's translate feature can help. Recommendations change, so check the publication date.

About this guide

Free information, shared with care

This guide aims to make the breast cancer pathway in Berlin easier to understand for patients, families and friends, including people who are new to the German healthcare system. It is free and meant to help you prepare and have informed conversations with your healthcare team.

Our principles: no paid medical recommendations, no promises about outcomes, and no replacement for individual medical advice. We link clearly to recognised sources and review the content when guidelines change. Any patient stories we add will be labelled as personal experiences, because everyone's path is different.

Last content review: 19 October 2026. The medical guideline linked above is Version 5, published January 2026. Please check the source organisations for later updates. This page is an educational starting point, not a complete clinical protocol.

Feeling very unwell? 112